Celebrating the Life and Work of April Hubbard: A Story of Resilience and Recognition

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April Hubbard changed the plan for her death so she could be there to celebrate her life's work at one of Canada's most prestigious arts ceremonies.

April Hubbard made a remarkable decision to change her end-of-life plans in order to attend one of Canada's most prestigious arts ceremonies to celebrate her life's work. The 40-year-old arts administrator and performer, who had pre-recorded her acceptance speech for the Governor General's Performing Arts Awards, had initially expected to receive medical assistance in dying before the gala. However, she decided to rewrite her speech when she realized she might be able to make it to the event.

Hubbard's journey is shaped by her battle with tethered cord syndrome, a degenerative nervous system disorder caused by spina bifida, which forced her to use a wheelchair at a young age. Despite facing challenges in pursuing her acting career due to her disability, she found her calling in arts administration and advocacy for accessibility in the theatre community.

Over the years, Hubbard worked tirelessly to make Halifax's theatre scene more inclusive for disabled audiences and performers. From ensuring fully accessible venues at the Halifax Fringe Festival to advising on accessibility at the Bus Stop Theatre, she has been a driving force for change in the arts community.

Hubbard's advocacy work paved the way for her return to the stage in 2019 as a circus performer, where she embraced her differences and challenged perceptions of disability in the arts. Her journey continued with the development of her drag persona, Crip Tease, during the pandemic, showcasing her creativity and resilience as a disabled artist.

Despite her health challenges and ongoing pain, Hubbard remains committed to accepting the Ramon John Hnatyshyn Award for Voluntarism in the Performing Arts in person. She reflects on the rarity of artists receiving such recognition during their lifetime and expresses gratitude for the opportunity to experience these moments of appreciation.

Hubbard's story is a testament to resilience, creativity, and the power of art to transcend barriers. Her journey serves as an inspiration to artists and advocates alike, highlighting the importance of inclusivity and recognition in the arts community.



Source: CityNews Toronto
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